Jennifer Miller Tullio 的照片

Racing to End Duchenne

Jennifer Miller Tullio 為 Parent Project Muscular Dystrophy 發起的籌款活動 ·

已籌集:$116,213?USD · 目標:$250,000?USDinfo-solid
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11 years...26 marathons...$112,223.35! How long and how many more to hit $250,000?? And so our story continues to end this awful disease called Duchenne!

Please join our journey! If you're already with us we hope you'll stay the course to find Gray and all his brothers ANOTHER DAY!

Our Upcoming Races:...
TCS New York City Marathon - November 3, 2019
Walt Disney World Half Marathon - January 11, 2020
Paris Marathon - April 5, 2020
Jack and Jill's Downhill Marathon - July 26, 2020

If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Tullio Family/Race to End Duchenne)

All funds raised will benefit Parent Project Muscular Dystrophy and go directly toward researching a cure. Your contribution is 100% tax deductible.

Thank you for your support!

Team Tullio
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11年... 26馬拉松...$ 112,223.35! 還有多久才能達到250,000美元?? 所以我們的故事繼續結束這種叫做duchenne的可怕疾病!

請加入我們的旅程! 如果你已經和我們在一起, 我們希望你能堅持下去找到格雷和他所有的兄弟們!

我們即將到來的比賽:...
Tcs紐約市馬拉松-2019年十一月3日
華特迪士尼世界半程馬拉松-2020年一月11日
巴黎馬拉松-2020年四月5日
杰克和吉爾下山馬拉松-2020年七月26日

如果你愿意, 你也可以郵寄一張支票, 支付給父母項目肌肉萎縮癥, 以:
家長項目肌肉萎縮癥
哈肯薩克大道401號9樓
Hackensack, nj 07601
(請注意, 支票是為了紀念圖利奧家族/種族結束duchenne)

所有籌集的資金都將有益于母體肌肉萎縮癥, 并直接用于研究治愈方法. 你的貢獻是100 %的減稅.

謝謝大家的支持!

圖利奧團隊
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Jennifer Miller Tullio ? 2019年10月29日
Jennifer Miller Tullio · 和 Nick Tullio

Rare Disease Awareness Day...a day like no other for my “Rare” Gray but a day for awareness for those not living with a rare disease. Duchenne hit Team Tullio 14.5 years ago but the fight continues to extend life, have better quality and ultimately END this terminal disease!
Please consider sharing or donating to make a difference TODAY! Thank u!
#careaboutrare
#300millionstrong
#Endduchenne...
#anotherdayforgray ????

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Parent Project Muscular Dystrophy
美國 501(c)(3) 非營利組織
Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact pol...icy, demand optimal care for every single family, and strive to ensure access to approved therapies. 展開
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